Valuing Life, Preventing Suffering: A Central Tension in Genetic Screening for Disability

By Ellen Painter Dollar
Author, No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproduction

I am writing this post from a hotel in Arlington, Virginia, where I am attending a conference of people with my genetic bone disorder, osteogenesis imperfecta (OI). OI is a collagen disorder that leads to fragile bones, skeletal deformities, and other symptoms. As I always find when I attend these conferences, the greatest benefit does not come from learning about the latest research or functional adaptations. Rather, it comes from being surrounded, as I so rarely am, with people who look and function as I do. Continue reading